Driving patient access for treatments targeting rare genetic disorders in the Middle East

By Ciaran Cassidy, S Analyst Email: ccassidy@partners4access.com At the World Orphan Drug Conference (WODC) this year Dr Maryam Matar presented on the success of the UAE genetic disease association (UAEGDA), an organisation which she founded in 2006 and currently chairs. The UAEGDA is a non-governmental organisation focused on controlling genetic disorders prevalent in the United…